3.04.2012

{Cheyenne - 11 months}

I know I say this everytime, but really...can you believe she is 11 months? A few more weeks and she'll be one year old!

Cheyenne is now crawling like a pro and pulling her self up to stand.  She is loving this new freedom and adventures.





During the day, we play a game we like to call "Where is my CeCe Bear".  Daddy began playing this game with her from real little, but it has gotten a lot funner now that she's mobile.  With one eye on her, I try to do house stuff and it's fun to see how fast she travels from place to place.  Every few minutes I call out "Where's my CeCe Bear?" and no matter where she's at or what she's doing she looks up and give you a huge grin. 

See if you can find her in these pictures






Another fun game she likes to play is "Tuero" (Peek-a-Boo).  She has played that for a while, but is now doing it with her little hands and other items.  She also throws kisses.


She is getting so good at signing. I think her first signing word was "bath". She also knows Pax (or the sign for dog), milk, eat.
Here is her doing her version of bath

She nods her head to say "yes".

She has 2 teeth now, the front right and the one next to it's right. I tried to take a picture but it's hard to capture.

She loves brushing her hair.




Medically Speaking:
We haven't had any changes lately.  She did get her CAT scan and she did great.  They thought she would have to get sedated because she's so little, but she did great without it.  She just laid there patiently until it was done.  Here's a picture of her.  We should know in a few weeks what the results were and where we go from here.


2.08.2012

{ Already Getting Into Trouble }

So I'm happy to announce that Cheyenne is now CRaWLiNG! Yes! Just yesterday, she decided to go for it.  It's crazy because it's only her 2nd day and she is gotten so good at it.  She has discovered that there is plenty of more things to explore.  Like I said, today it's only her second day and already having to keep a close eye on her. 

Already, I have caught her reaching for the outlets, pulling herself up on the TV stand, pulling things out of her toy drawer and the worst, sucking on one of Pax's bones. YUK!
In addition to her crawling, one of her top teeth finally broke thru. Maybe that's why she was chewing on the bone.
 I forgot to mention that we were told that the one that she has had on the bottom since she was 4 months old is just a growth. 
She loves watching TV, especially shows with music.  Today, we discovered a show called "3rd and Bird".  They sing 90% of the time and she loves to dance to it.
Check out the videos.

 





2.02.2012

Toothless In Utah

Drew finally lost her other front tooth.  She looks so cute without them. 




{ Cheyenne - 10 months }





She is developing quite well.  Most recently she started putting her play cell phone up to her ear when she's playing with it, just like her mommy.
She started "Caterpillar Crawling" (see video on previous post) and she is close to crawling the regular way.
She goes from laying down to a sitting position.
She loves familiar faces, but specially Drews.  She just lights up when she sees her.
She is beginning to recognize people by their name, Frankie. 

Medical Updates:
We are excited to say that we are temporarily out of the "wait-and-see" stage.  For the past 10 months, they have told us that we needed to wait until Cheyenne was closer to one year to see if her jaw bones would develop enough to have surgery.
The good news is that Dr. Park (ENT) encouraged us to begin that process now to see if surgery is a possability now.  This past week we had an appointment at the Cranialfacial clinic at Primary Childrens Medical Clinic.  This clinic is amazing because they have every doctor that has to do with the reconstruction of the face in one office.  We had already seen them about 8 months ago, but this time it was to see if there had been any progress with CeCe's jaw bones.
Dr. Siddiki (the plastic surgeon) ordered a CT Scan to determine if there had been any changes in her bone structure, particularly the jaw bones.  When CeCe was only one day old, PCMC had one done on her and the results were inconclusive.  They couldn't quite tell if her jaw bones were underdeveloped or not there at all. 
So here's the two different possible outcomes...



If they determine her jaw bone is completely there but just abnormally small, then they can do a procedure to extract her jaw.  For what I understand, they break her jaw bone and insert some kind of mechanism to separate it.  When she comes home, we will be in charge of extracting it a millimeter per week until we reach the normal size.

The other...if they determine that her jaw bone is partially there, we again get to play the "waiting game". According to Dr. Siddiki, we would probably have to wait until she is 4 yrs old to perform a surgery, where one of her own ribs gets transplanted and used to re-build her jaw bone.

For what they can see in the original CT scan and what they can feel, she might not have a complete jaw bone.  She might be missing the "Ramus" (see picture above).  If this is the case, then the second surgery will be done.

We are excited to see the results. Either way, we are making progress.

1.25.2012

{ Caterpillar Crawl }

CeCe is now at the "crawling" stage, however she has decided to use a unique way to travel.

We call it the "Caterpillar Crawl"