2.02.2012

{ Cheyenne - 10 months }





She is developing quite well.  Most recently she started putting her play cell phone up to her ear when she's playing with it, just like her mommy.
She started "Caterpillar Crawling" (see video on previous post) and she is close to crawling the regular way.
She goes from laying down to a sitting position.
She loves familiar faces, but specially Drews.  She just lights up when she sees her.
She is beginning to recognize people by their name, Frankie. 

Medical Updates:
We are excited to say that we are temporarily out of the "wait-and-see" stage.  For the past 10 months, they have told us that we needed to wait until Cheyenne was closer to one year to see if her jaw bones would develop enough to have surgery.
The good news is that Dr. Park (ENT) encouraged us to begin that process now to see if surgery is a possability now.  This past week we had an appointment at the Cranialfacial clinic at Primary Childrens Medical Clinic.  This clinic is amazing because they have every doctor that has to do with the reconstruction of the face in one office.  We had already seen them about 8 months ago, but this time it was to see if there had been any progress with CeCe's jaw bones.
Dr. Siddiki (the plastic surgeon) ordered a CT Scan to determine if there had been any changes in her bone structure, particularly the jaw bones.  When CeCe was only one day old, PCMC had one done on her and the results were inconclusive.  They couldn't quite tell if her jaw bones were underdeveloped or not there at all. 
So here's the two different possible outcomes...



If they determine her jaw bone is completely there but just abnormally small, then they can do a procedure to extract her jaw.  For what I understand, they break her jaw bone and insert some kind of mechanism to separate it.  When she comes home, we will be in charge of extracting it a millimeter per week until we reach the normal size.

The other...if they determine that her jaw bone is partially there, we again get to play the "waiting game". According to Dr. Siddiki, we would probably have to wait until she is 4 yrs old to perform a surgery, where one of her own ribs gets transplanted and used to re-build her jaw bone.

For what they can see in the original CT scan and what they can feel, she might not have a complete jaw bone.  She might be missing the "Ramus" (see picture above).  If this is the case, then the second surgery will be done.

We are excited to see the results. Either way, we are making progress.

1.25.2012

{ Caterpillar Crawl }

CeCe is now at the "crawling" stage, however she has decided to use a unique way to travel.

We call it the "Caterpillar Crawl"


12.28.2011

{ CHeYeNNe - 9 months }


This month went by so fast! CeCe is doing great.  She is so close to crawling and finally mastered rolling over from her back to her tummy.  She is getting more and more used to her voice valve.  We have made it a habit to put it on during her bath time.  She still makes sounds the whole time she wears it, meaning she still hasn't figured out how to breathe through her nose or mouth without pushing sound. 
This month, they increased her feedings because her weight had platoed.  This has helped significantly.  She gained about one pound in 3 weeks since the change.

December 8th
She weighed: 12 lbs 10 1/2 oz
Length: 25 inches
Head Circ: 42 1/2

Today (December 28th)
She weighed: 13 lbs 10 oz


{ Christmas Concerts - 2011 }

This year, Frankie made it to Timpanogos High School A Capella Choir. He is a 1st tenor and as always loves it.  We have seen them perform twice this year.  I'm trying to convince him to sing during sacrament either by himself or with his guy friends who are also in the choir.  We'll see if he ever does.


Drew has began her singing career by singing at the school Christmas Sing. 
Her class sang "I want Hippopotamus for Christmas"



{ All I Want For Christmas Is My Front Tooth }

On December 5th Drew lost one of her front teeth.  We hoped that she would loose both so that she could ask Santa for her two front teeth.  No such luck.  It's getting close though.