She is developing quite well. Most recently she started putting her play cell phone up to her ear when she's playing with it, just like her mommy.
She started "Caterpillar Crawling" (see video on previous post) and she is close to crawling the regular way.
She goes from laying down to a sitting position.
She loves familiar faces, but specially Drews. She just lights up when she sees her.
She is beginning to recognize people by their name, Frankie.
Medical Updates:
We are excited to say that we are temporarily out of the "wait-and-see" stage. For the past 10 months, they have told us that we needed to wait until Cheyenne was closer to one year to see if her jaw bones would develop enough to have surgery.
The good news is that Dr. Park (ENT) encouraged us to begin that process now to see if surgery is a possability now. This past week we had an appointment at the Cranialfacial clinic at Primary Childrens Medical Clinic. This clinic is amazing because they have every doctor that has to do with the reconstruction of the face in one office. We had already seen them about 8 months ago, but this time it was to see if there had been any progress with CeCe's jaw bones.
Dr. Siddiki (the plastic surgeon) ordered a CT Scan to determine if there had been any changes in her bone structure, particularly the jaw bones. When CeCe was only one day old, PCMC had one done on her and the results were inconclusive. They couldn't quite tell if her jaw bones were underdeveloped or not there at all.
So here's the two different possible outcomes...
If they determine her jaw bone is completely there but just abnormally small, then they can do a procedure to extract her jaw. For what I understand, they break her jaw bone and insert some kind of mechanism to separate it. When she comes home, we will be in charge of extracting it a millimeter per week until we reach the normal size.
The other...if they determine that her jaw bone is partially there, we again get to play the "waiting game". According to Dr. Siddiki, we would probably have to wait until she is 4 yrs old to perform a surgery, where one of her own ribs gets transplanted and used to re-build her jaw bone.
For what they can see in the original CT scan and what they can feel, she might not have a complete jaw bone. She might be missing the "Ramus" (see picture above). If this is the case, then the second surgery will be done.
We are excited to see the results. Either way, we are making progress.





